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Thursday, January 31, 2013

Caringbridge Update #3

You all are praying so fervently...it's overwhelming and amazing, and I am more grateful than I can put into words.  Without dissolving into tears, anyway.
The tears have come very easily these days, but thankfully, these last few days, there has been a bit of a reprieve.  I have laughed more in the last few days than in the last few weeks combined.  It has felt good to laugh and be reminded of the joyful things that are all around me.
Before I tell you more about the laughter, we need to return to Friday.
Friday, these were the words of the perinatologist:  "Well, it all looks about the same.  No better, no worse."  To which I replied, "How could it be worse?" before realizing that, actually, I knew that answer.  We could have learned on Friday that Bart was failing.  But no, he was doing great. ("Great" is my word, not the docs.  The doctor is very clinical and says things like, "Looks like a normal 11-weeker.")
In fact, our ultrasound was rather amazing...two babies, one normal looking and the other not, kicking their little legs and playing together in the womb.  It was awesome.  We both understand that without a miracle, they will never play like that together outside the womb (not on Earth, anyway), so we are treasuring the glimpses into their world that we get.  I think that God is gifting us with little pictures of our babies together that we can store up in our hearts to keep with us when this part of our lives is but a memory.
Similarly, I'm pretty sure that I'm feeling them kick every now and then...and even seeing my belly move.  Now, I realize that that's way too early to see their kicks...but I'm pretty sure that's what it is.  Just another little gift from our God who loves us and knows what we need.
So to go from the joy of seeing them in there to the grim reality of what's ahead was hard...but God was walking with us.  There is a children's song written by Keith and Krysten Getty that has been my near constant companioin these last couple of weeks, and it rang through my head as I lay on the ultrasound table on Friday...
"You are the Shepherd; I belong to You.//When I walk on rough ground, you can guide me through.//You know my name, you know my voice.//Before I was born, I was Your choice.//Show me how to follow; Lord keep me close to You.//You are the Shepherd; I belong to You."
The sheep don't question the shepherd; they simply trust.  When my heart is set on Him, I can choose to trust, too.
After our first appointment, we headed down the hall to my OB, eager to see Dr. Dolan, the lead doctor in my surgery eight years ago and also one of the docs who delivered Hannah.  God used him to save my life when I hemorrhaged after Joshua died, and he and his team have been with us ever since.  We trust them, and I was so looking forward to talking to someone who views life in the same way that we do, who knows my history, and who cares about us. (I'm kind of a special patient there...almost dying during childbirth will do that for you.  I don't recommend it, but it sure gives you a great relationship with your doctors.  We really love them.)
After checking my vitals, the NA said, "Dr. Dolan will be in shortly."  She came back about 5 seconds later to say that he had been called downstairs to deliver a baby and that he had 2 other patients in labor as well.
I burst into tears.  Again.
BUT.....thankfully, the other doctor who was with him during my two surgeries and whom we've seen every time so far in this pregnancy was in the office, and she agreed to see me.  And not only that, but she stayed well past quitting time to talk with us, answer any questions she could, and just be a support.  She was amazing, and when she hugged me at the end, there were tears in her eyes, too.
One of the things that made our time with Dr. Becky so good is that she understands where we are coming from.  Whether or not she agrees with our position that life begins at conception, she understands that we do and completely backs us and knows that the decisions we have ahead of us are impossible ones.  (I realize that I haven't explained all of that yet; it will come in time.) 
Dr. Becky, while not defending our perinatologist (who, without going into detail, has been rather callous about life as he has discussed our situation with us), reminded us that many, many people wouldn't even deal with these decisions; they would just abort now.  Rather than have to face the pain that is ahead, many of Dr. W's patients would go the route of terminating the pregnancy, taking away both lives and "starting over", rather than having to walk through this.  Again, she wasn't defending him, but I think she was trying to get us to see where he is coming from; we are not his typical patients.  In fact, when she assured him that having intrauterine surgery, one of our options, would not be an easy decision for us to make, he asked her why.  So she explained our position and our faith and our ministry to him.
I'm really thankful for her.  In fact, I'm kind of glad that Dr. Dolan had some babies to deliver.  God's timing was good even in that; I think I needed that convo with Dr. Becky.
She encouraged us to seek out every option and every opinion that we needed to in order to feel informed, so that when the time came for the decisions to be made, we would feel ready.  That was such good advice.
On Saturday, we were able to speak with a Christian perinatologist, and it was so helpful.  Although our peri has been urging us to go to the Children's Hospital of Philidelphia for a consultation (Yes, that's how serious and rare this is.), Dr. Calvin confirmed what research we had been doing that was telling us that Cincinnati has a great program, too.
My parents live close, lots of our supporters are in the area, and a couple of my closest friends from school live right there.  Plus, the head of the program is a pro-life perinatologist who comes with the highest of recommendations from Dr. Calvin.
Our next appointment is on Friday, Feb. 8.  We will be 13 weeks then and will begin making plans for a trip to Cinci late Feb/early March.
These are the details, folks.  Not every update will be so long, but I am kind of a detail girl...just am.  Hopefully it helps you figure out how to pray more specifically.  God is using you to keep us strong, and we are so thankful for your love and your prayers.

Tuesday, January 29, 2013

Sweetness--Caringbridge #2

Tonight, as I was resting on the couch, Job walked up to me and said, "Bye bye, Baby A" to my tummy.  Then he looked up, told me that "she" was going to Heaven, and walked off.

I'm not sure what all God is communicating with our boy, but at the very least, it was sweet that he's in this with us, is thinking about the babies, and has somehow decided that Aaron is a girl.  :)

Monday, January 28, 2013

BASKETBALL!

Neil is playing ball, and he loves it.  In fact, tonight he told me that he is done with soccer.  We'll see if that sentiment holds once soccer season rolls around.  ;)  For now, though, he is loving playing on the Pacers Upward team and so far, is the high scorer of the season!  Last week, he only scored 6 points...I think his high so far was 20 points!!  Pacers are 3-1 half-way through the season.  Way to go, buddy!!!

Sunday, January 27, 2013

The story--a catchup (from Caringbridge)

I have decided that I want to post our Caringbridge updates here, too, if even just so I have a record of what was happening at this time in our lives...and also, I suppose, because some people may choose to come here instead of to the Caringbridge site.  Either is fine.  This is a post from Jan. 20...
Hello, faithful friends, family, and prayer warriors--
I don't know how much to say...there is so much.  But I am going to attempt to get something on paper and into your hands so that you know at least some of the specific ways to be praying.
For a little catchup:
-Dec. 11--found out we were pregnant!
-Dec. 20--found out there were twins!  One of the heartbeats was stronger than the other, and a vanishing twin situation was suspected.  It was excitement with a little bit of reservation (and a lot of excitement--we are parents of TWINS!).
-Dec. 26--found out that one twin hadn't grown in a week.  It appeared that we were miscarrying one baby.  We began to pray and wait for our next ultrasound 2 weeks away.
-Jan. 10--Both babies were there and growing!  Our doctor still suspected a miscarriage, but for us, it was excitement all around!  One baby's heartbeat was still weaker than the other.  More waiting.
-Jan. 18--Saw the perinatologist for the first time for the purpose of getting started on Lovenox, the blood thinner that I'm on when I'm pregnant (because of my genetic propensity to clot and my history).  Found out the terribly difficult news that one of our babies doesn't have a functioning heart and is being kept alive by the other baby who is doing all of the blood pumping for both of them.  Heard clearly that not only will one not survive, but the other will eventually be in danger if the other one continues to grow.  It's a horribly sad situation, and we begin to process all that this diagnosis means.  The decision is made to wait on the Lovenox, in case an intrauterine surgery is needed in the next couple of months.
-Jan. 24--My OB sends me to the ER due to persistent headaches, concerned about possible blood clots.  The ER doc considers various tests involving various risks but eventually decides that it's best to start the Lovenox.  Daily injections, here I come!
That gets us to Friday.  You can already see some of the many ways to be praying....
I'm exhausted, and, by the way, JT has pneumonia and has been throwing up on and off for the last 10 hours or so.  Please pray for him, too.
Thank you for your love, prayers, kind words, and all the support you have given and will continue to give.  This is the beginning of a long road....
Love, Sarah (for Jeff, Seth, Thad, Hannah, JT, and the twins)

Tuesday, January 22, 2013

It's...

Complicated.  That's the word the doctor kept saying.

Complicated.

I really don't care for that word right now.  I would really rather that the situation not be complicated.

But this is the road that our Sovereign Lord has given us to walk...so we pray that we will walk it with dignity and grace.

Baby Aaron is very unlikely to be held in my arms in this life; he is likely to meet his brother, Hunt, in person before he meets his mom and dad.  And I'm working on wrapping my mind around that reality.

Meanwhile, Bart is growing perfectly and looks amazing on the ultrasound screens.  However, he could eventually be in danger, as well, if his heart continues to have to pump blood for both him and his growing brother.

Aaron, we believe, does not have a functioning heart; he is living on life support provided by Bart.  It's a terribly sad situation.  I was just looking forward to having twins running around here so much, but it's not gonna happen.

Unless God performs a miracle.  Which He can do.

I am so grateful that His actions are not based on my faith, because I'll tell you that I don't have much faith right now that the situation will change.  I think that at Friday's appointment, we will likely get confirmation that the doctor's assessment last week was right.

Oh me of little faith. 

I want to believe my God for big things, and I do.  But I'm just not sure His big things are the same as mine.

His big things are better by far.

And so we wait some more...

Thursday, January 17, 2013

Over and Over

I have gone over every scenario in my head, it seems.  But each time I do, I come to the same conclusion.

"I am the LORD, and you can trust me."

I don't need to figure it out, or prepare perfectly, or practice my reaction to any given scenario.  I simply need only to trust Him.

We received good news a week ago when I went for my third ultrasound.  It was nothing short of awesome to see two babies who were growing and moving on the screen.  God answered the prayers of His people in the affirmative, and we are so grateful. 

But Aaron's heart is still very weak.

And so we have continued to pray.  Tomorrow we go for our first perinatologist visit of this pregnancy.  They are specialists in pre-natal care; it's what they do.  So I am counting on the fact that they will have a lot of insight into what's going on. 

Still, they don't know everything.  But HE does.

So I'm looking forward to the appointment and to, like before, seeing God at work, no matter the outcome.

He is our rock, our strength, our portion forever.

Amen.

Sunday, January 6, 2013

A and B Name Update

Last night while watching the Packer game, genius struck.  How about "Aaron" and "Bart", in honor of our two favorite QBs??!